A triggering scent..

Isn’t it crazy how certain scents can be associated with so much in a persons life? Some scents can be nostalgic where your instantly transported back in time. A scent that reminds you of your childhood perhaps or a perfume that reminds you of a loved one. A scent that reminds you of a happy time in your life or even a certain scent that reminds you of a tragic time in your life. A scent your all too familiar with that makes you cringe. A scent you hope to god you never smell again. It brings you right back to that tramatic moment. It lingers in your mind and shakes you to your core.

My brother Marc was all about his Cool Water cologne. I remember after he passed my Mom spraying it on one of his shirts that she would then sleep with every night. That was a scent that brought her comfort almost like he was still close by. Any time she smelt that cologne out and about she instantly thought of him. At first it made her sad but then it became a nice reminder of him.

I also did the same with Easton’s scent. I would sleep with his sleep sack every night after he passed. I even went as far as not washing the clothes he had last worn for over a year. I remember feeling so much sadness when I could no longer smell him on his sleep sack anymore or on his clothes. I longed for that scent and I wished their was a way I could of bottled it up.

Last week our rainbow boy had eye surgery. Of course I had a lot of anxiety leading up to the day. The day came and it was a cold breezy day with the scent of fallen leaves in the air. Much like the day Easton had passed. I had mentally prepared myself to be right there with our boy while he was put under and I even reassured him I’d be there until he fell asleep. It wasn’t until we were there that I was informed I couldn’t go back into the OR with him. He surprisingly handled it better than I thought he would and much better than I did. As we watched him wheeled away on the stretcher I felt that overwhelming feeling of helplessness again and it took all I had to hold myself together for him. Thank god surgery was only an hour and I knew he was in the best hands.

Once surgery was over we were brought to the recovery room where he was waking up as a nurse was holding him. I didn’t mentally prepare for that part nor did I realize how hard it would be. Seeing the IV in his hand, the wires attached to his chest, being hooked up to a monitor while he was in and out of sleep. It was all so triggering. I sat down in the bed and as the nurse handed him over to me it was in that moment I lost it. I could no longer hold back the tears. The triggers were one thing but the scent I had instantly smelt on my boy is what put me over. I was all too familiar with this scent and it was beyond triggering. It was the exact scent that I had smelt on Easton in the hospital when I last held him. The same one that I felt angry over because he no longer smelt like Easton.

It was like I was placed right back to where I was 6 years ago only holding a much bigger child that was awake and crying. One who was going to be ok and could go home with us. Thankfully we weren’t in that recovery room for long and we were able to leave pretty soon after. The second we arrived home that agonizing hospital scent was gone.

The mind certainly doesn’t ever let you forget a scent no matter how much you wish it would.

5 years

It’s been awhile..

5 years have passed and the ache and pain still remains. Grief always creeps up especially on the eve of his passing.

Driving home from a friends house tonight the tears started flowing as I remembered everything we went through 5 years ago. When we got home I just sat and hugged our 3 year old son crying on his shoulder. At first he looked confused and then concerned. The only words I could mutter to him was “I missed Easton.”

Our three year old Ryker then said “He’s right here.” He proceeded to run to our console table where the pillow with Easton’s picture on it was and brought it to me. He looked at me and said “I miss him too that’s my brother he’s in the sky.”

I often wonder if Easton has visited him or if he just knows who he is because I talk about him so often. I’ll always wonder what life would be like with him here. Would they get along and be the best of friends? Or would they constantly fight for my attention like Ryker and their little sister Adelina do? Would Easton be keeping his little mischievous brother in line? Or would they both be right there with each other keeping their parents on their toes?

A loss of this magnitude never gets easier. We just learn how to live with it. My heart and soul will always yearn for my baby boy no matter how much time has passed. No matter how much joy his siblings bring there will always be a constant sadness. A constant hole in my heart that will never be mended.

His angelversary will always be the hardest time of all. The constant painful reminder.

We miss you always and forever baby boy 💙🐘

Two days

For most people who have gone through a loss one day out of the year is the hardest one of all. The day their loved one was called home and left this earth. The day their whole world stopped and changed forever. The day referred to as their “Angelversary”.

For me it’s two days. Two days that I find are the hardest of all. The day Easton stopped breathing and the day after when he passed. It’s been 3 years and both days are still the hardest. These two days will always be the hardest.

My last morning with him replays in my mind often. When all was right in my world as I nursed my beautiful baby boy who kept stopping to stare and smile up at me. I remember feeling pure happiness in that moment and wished I could just stay home with him. If only I knew it would be the last time I saw that beautiful smile and those big blue eyes.

It never gets easier but as time passes you heal and learn how to live with it. That’s not to say that the pain isn’t still there. Especially on the hardest day or days.

There will always be an ache and longing in my heart for my beautiful baby boy. Today and tomorrow always.

Guilt

“The grief journey is long, winding, uncharted and at times torturous. Two of the most common emotions experienced on this journey will be times of anger and times of guilt. Guilt is insidious, it creeps under our skin and becomes a part of us before we realize it’s happening. When linked to a bereavement, guilt is often a burden we put on ourselves rather than something that others make us feel. When a death occurs we feel a sense of helplessness. We would have done anything to stop it from happening, but sadly it is a reality, and we feel overwhelmed. So where does guilt come in? Usually guilt comes as we look back over events surrounding the death of our loved one and we imagine how things might have unfolded differently. We sometimes come to the conclusion that maybe, just maybe, we could have done something that would have changed the outcome. We say ‘if only…’ or ‘what if…’ and it gives us the feeling that the death was our fault because of something we did or didn’t do. If we did take action we may feel that events were therefore within our control and we could have changed the outcome.”

If there’s one thing I’ve learned through this journey it’s that the feeling of guilt continues to resurface. In the beginning it’s more so the guilt of the what if’s or if only I had done something differently. As time goes on you learn to let go of that guilt. Now it’s the guilt of feeling any type of happiness again or guilt of not crying as much as I used to. The guilt of enjoying new things in life. The guilt of moving forward and living my life again.

Do I not miss him as much? How could I continue to live my life with out him and not be crying every day? How could I smile again? How would Easton feel knowing I wasn’t able to honor him on his Birthday this year? Or even worse not being able to do his memorial game for the past 2 years? I promised him I would every year and I broke that promise. Why haven’t I written in his blog in a long time? How could I allow myself to be too busy and not talk about him? What kind of Mother am I?

These are the constant questions I find myself battling with. These are the feelings of guilt thus far on my journey. I know these feelings will pass eventually but for right now it is my constant battle these days.

I always have to remind myself Easton will always be a part of me no matter what and I will never ever forget about him.

Empty Room

Selling our house came with many mixed emotions. It was not only the house Ryan and I began our relationship in but it was the house we became a family in. It was the house we brought our baby boy home to. The majority of our memories with Easton were made in that house.

My favorite room in our house was Easton’s nursery. It was more than just a room to me. We poured so much love into that room as most new expectant parents do. It also held so many beautiful memories in it. At times I could still smell him in it and hear his adorable laugh. Other times it was just too hard to step foot in and the door was kept closed. I knew the hardest part for me would be saying goodbye to Easton’s beautiful room. It was now a room that had been untouched collecting dust for over a year. An empty room that held every piece we had left of Easton.

As we packed up our whole house we prolonged touching his room as long as possible. We saved it for last as a part of me wanted to admire it as long as I could and I knew it would come with a lot of emotions. The day came and it was so hard to dissemble his room and box up his belongings. Seeing his changing table left the exact way it had been on the day he passed. His laundry hamper still filled with his dirty laundry. A crib he never got to sleep in. So many toys left untouched. His closet lined with clothes that still had tags hanging from them. All a painful reminder that we never got the chance to see him grow up. So many hopes and dreams for him.

Surprisingly as we sorted through all his drawers it brought back some happy memories we had with him. Certain outfits he wore I thought about how well he rocked them and where he went in them. Even seeing some of his favorite toys brought some comfort as I remembered how happy they made him. Picturing his big beautiful smile. That is what gave me the strength to pack up his room. Easton gave me the strength.

Before we moved out I went back into his empty room sat on the floor and cried. I so badly wished things could be different. I may have been saying goodbye to his room and all that could have been but I’ll always have the beautiful memories we made in that room with our baby boy.

Blue Christmas

Holidays just aren’t the same when you go through a loss. You find yourself unable to decorate and question how it’s even possible to celebrate. This year I found it too painful to put our tree up. I couldn’t see anything Christmas in our house. It was just too hard. I went to a griefshare group on surviving the holidays weeks before. It made me feel better about feelings I was having as I was not alone. Anxiety set in days leading up to Christmas. I dreaded the day so much and didn’t know how I’d be able to handle it. This was our second one with out Easton but I found it to be A LOT harder. Last year it had only been a month since he passed and we were still numb. This year would of been the year Easton would of opened gifts and been more involved.

Christmas was always my favorite holiday until we lost Easton. It no longer held that same joy and excitement. It now felt sad and meaningless. Suddenly that Blue Christmas song was all too relatable.

Christmas morning came and I spent majority of the day in bed crying. Ryan and my family pleaded with me to get out of bed and try to celebrate. When I finally did I felt like I was in a fog the whole time and a smile never crossed my face. I couldn’t wait for the day to be over. Once it was over I thought to myself “I survived another holiday.”

After every holiday I breath a sigh of relief and am thankful I managed to survive another with out Easton. Some day I will be able to celebrate again when I feel ready and the pain lessens. When that happens I will always make sure our baby boy is included no matter what.

The day our world came crashing down

November 20th 2017. That was the day our whole world came crashing down. I’ll never forget that phone call at work or the sound of Ryan’s voice. “Easton stopped breathing” were the piercing words on the other end. I remember Ryan frantically telling me I needed get to the hospital right away. I got off the phone and I just froze unsure what to do next. I instantly went into a state of shock and disbelief. How could this be he was just smiling at me that morning? This can’t be real he was perfectly fine when I dropped him off at daycare.

I was a half hour away and had to drive myself to the hospital after only knowing that my baby stopped breathing. I felt so helpless. I remember the second I got into my car I cried out to my brother Marc. I begged him to please help my baby. Please let him be ok. I then called my Mom crying saying “He’s dead Mom. There’s no way he can survive with out breathing” She tried staying positive for me but I could hear the worry in her voice and she was also crying. My Dad and her were also rushing to the hospital. Someone from the hospital then called me to see how far I was. The man stayed on the phone with me to make sure I got there ok. I told him I just wanted to know if my son was ok and all he could say to me was that they would speak to me when I got there. I knew right then it was bad. I vaguely remember the drive there but I somehow managed to arrive at the same time as my parents.

When I arrived to the hospital Easton was still in the ER being worked on. I’ll never forget the look on the nurses and doctors faces when I walked through the double doors to his room. Ryan was standing off to the side in shock watching as they worked on Easton. It did not even look like our baby who was lying in the bed hooked up to all the machines and tubes. A friend of mine who happened to be working on Easton came over and explained what was going on. He had been revived but we would soon find that only gave us false hope. He then had to be moved up to the Pediatric Intensive Care Unit. It was there that we were given the devastating news.

The Doctor asked if she could speak to Ryan and I and brought us into a room with one of the nurses. I remember the Doctor had said to us I just want you to know it’s really bad and Ryan asked how bad like he’s not going to make it bad and she just shook her head yes. She then went on to explain everything that was going on with his body and what the plan was going forward which I didn’t hear any of. Instead all I could do was ask “So there’s no way he’s going to make it?” She then told me again that he wouldn’t make it and that he had been down for too long. All though he had been revived it was too late. Easton had lost too much oxygen to his brain and organs. I asked numerous times what happened to him. They didn’t have a single answer for us. All they could do was offer us some time with Easton and to keep him comfortable.

Family and friends showed up and we all spent some time with Easton. We had a priest come in and baptize him as we all stood around him in his room. I kept telling myself this is all just a bad dream and that I’d wake up soon. This isn’t real this can’t be real he was fine that morning. This doesn’t make any sense. This can’t be happening. We can’t possibly be enduring this again. What happened to my baby?

I was able to hold Easton in my arms for a while. He was so cold and all I wanted to do was keep him warm. I kept looking down at his eyes hoping they would open. I still didn’t believe he was going to die. I was hoping Easton would prove them wrong. After all our strong willed little boy had fought his way back to us. I kept hoping for a miracle. I stared at him admiring his perfection and amazed at how big he had gotten. I kissed him on the forehead several times telling him I loved him. I can only hope he felt my love and that he knew I was there.

As the hours passed Easton was starting to look worse. Everyone was just waiting on me to say when it was ok to let him go. But how could I ever be ready for that? His life was still just beginning. I had so many plans for him. So many things I never got to see him do. I asked the nurse what would happen next if we kept him alive and she explained to me that he would start to bleed out of his ears as his organs were failing. He had bled out of his nose and that felt normal to see but blood in his ears would of been a lot harder to watch. It was then that I finally made the decision to take him off the ventilator. I knew it was time as I couldn’t watch him suffer. I wanted him to go peacefully.

The doctor and nurses began removing the iv’s and the breathing tube from Easton’s mouth as we watched knowing it was time to say goodbye to our sweet boy. They quickly wrapped him up in a blanket and placed him in my arms. We were finally able to see Easton again. Our baby with no wires or a tube attached to his face. It wasn’t long after that I heard him let out his last breath in my arms. November 21st 2017 at 3:51 am our baby boy was pronounced dead.

I’ll never forget the guilt I felt leaving him in that hospital bed. It felt so wrong to leave our baby behind. We had never left him before. I wanted to stay with him as long as I could as I couldn’t bare the thought of him being alone. A nurse then came in the room and told me she’d stay with him. We then made the long walk through the hospital. We walked out of the same hospital doors that we had walked out of 4 and half months prior. Only this time with empty arms. We left confused, heart broken, and completely shattered. There was no way to prepare for any of this. That day had become the worst day of our lives.

The following day was the day before Thanksgiving. On a night where I’d normally go out and spend time catching up with old friends I now found myself in a funeral home holding my lifeless child. I needed to see him again and I yearned to hold him just one more time. He looked so beautiful and peaceful. My parents and Ryan’s parents had also come to see and hold him again. It was heartbreaking to know that all of us in that room had endured the loss of a child. It opened old wounds for our parents who still grieve the loss of their own. Now they had to watch their children endure that same pain. Pain they never wanted us to feel or ever know.

That Saturday was Easton’s Memorial service. So much of that day is a total blur. None of it felt real and I was still in shock. I remember it being beautiful just like him. I can’t really remember who was there as so many had come to give their condolences and cry with us. It was the unthinkable and no one could fathom what we were going through. It took all the strength I had to stand there and keep it together when every single part of me wanted to be with Easton. After his service was over Ryan and I spent a little more time with him alone. We had his tiny white casket open so we could see him one more time and say our goodbyes. We left our picture with him and we wrote him a special message on the back of it. We wanted him to always have us with him and for him to always know how loved he was.

It’s been a year since Easton passed and it’s still just as painful as it was then. It’s hard to believe an entire year has passed since I last saw his big smile or last held him in my arms. Some days I still feel the weight of it all as if it just happened. I still have my bad days but they have lessened a bit. His death has changed me in so many ways. I am no longer the same person I once was. I do what’s best for me now and put myself first. I now look at the world differently and I’m even more appreciative for all that I still have. I never ever take this life for granted. I see all the kindness and compassion that still exists in so many. I’ve slowed down and made sure to never let time pass me by. And I always always choose love.

Easton taught me so much about life in his short time here. He gave me the best 4 and a half months of my existence. His unconditional love and pure happiness is what I will remember most. I will always love with all my heart just like Easton did.

I will continue to do good and make an impact in honor of him even on the hardest days. I will always keep his memory alive for the rest of my life. That is the reason why I’m still here. He is my reason. He loved me all of his life and I will love him all of mine.

Some day I will hold you in my arms again little man. I love you so much Easton Marc 💙

You are my everything

Answers

Answers are what every parent who loses a child suddenly so desperately needs. With out answers every “what if” can swallow you whole. The not knowing why kills you inside. You are your child’s protector and the guilt of not being able to protect them from this hurts to your core. You start questioning if you were even fit to be a parent. You seek out answers hoping that these answers will help you cope. You read up on every possible thing that could remotely make sense as to why your seemingly healthy child was taken too soon.

For 10 long months I did just that. Many months I’d lose sleep not only due to my grief but also because I was constantly researching every single cause that I could find. I would even stare at pictures and watch videos of Easton over and over again looking for answers. I’d obsess over it and ask myself what if he had this or what if he was sick and I didn’t notice. Surely as his Mother I would have known if something was wrong. But still I questioned if I had missed something.

Rumors still circulate about how our child passed. I find it so sad and cruel that when a person dies people need an answer so badly that they speculate or assume things. They need to know why instead of offering any type of comfort to a grieving family. It only amplifies your grief when you hear your child’s death is being talked about in that way. Even more so when they try to pass blame on you or others when they don’t have the slightest clue. Believe me I wish it were that easy to find out why instead of having to wait almost a year for any type of answer.

I knew that I wasn’t willing to accept a vague answer or no answer at all from the medical examiner. I’m an information coper so I needed to find someone who could throughly investigate and give us an exact cause. So a month after Easton passed Ryan and I found ourselves at Boston Children’s Hospital going over Easton’s case with an incredible Doctor. He belonged to a clinical program that researches sudden death in pediatrics. That is how we would get the answers we so desperately needed.

Someone once asked me will it really even help if you do get answers? I immediately said it would help as I could finally let go of a lot of “what if’s”. I could let go of the overwhelming feeling that I failed my child. I could also let go of the guilt I felt for not being able to protect him.

It’s been a month now since we finally got an answer as to why our sweet baby boy was taken from us. Did it help? Somewhat. Yes having any type of answer is better than no answer at all but it still hurts. It hurts a lot. It did help make some type of sense of it all. It didn’t lessen the pain though. The old “what if’s” are gone and are now replaced with new “what if’s”. It’s been a lot to process and has brought on so many new fears. One cause that I had feared is now a reality.

I do know Easton’s death may save others lives and for that I couldn’t be more proud. I’m so proud that I am his Mother and that he is my son. Our baby boy sure left his mark on this world and made a huge difference. He will never be forgotten.

Where are my blogs?

Recently I’ve been asked by many why I haven’t blogged in a while and if I’m still writing. My answer was that the past few months whenever I’d attempt to write it was nothing but angry frustrated words that I didn’t feel was worth sharing. Who would want to read those daily negative thoughts? The last thing I wanted to do was bring others down with me. A friend had once said to me that’s all part of it. Every single emotion is a part of this journey. That friend could not be more right. So today as I sit here in beautiful Nashville alone reflecting on these past 4 months I have finally decided to write again.

These past few months have been so up and down. At one point I felt as though I was failing at everything. I was struggling at my job. I could no longer be the friend I wanted to be or the wife I once was. I felt as though I was failing at life in general. I had nothing left to give or offer. I even asked God several times why I was still here as I no longer felt I served a purpose. I felt it was so cruel of him to put me through this torture. The torture of surviving another day with out my baby boy and to still have no answers as to why he called him home.

A much needed vacation away spent with family helped lift my spirits. One night as we all sat at dinner laughing at my Uncle’s humorous self I looked around the table and thought about how much we had all been through. Yet here we all were still able to laugh and smile again. I could not help but feel so lucky to have so many that loved me and be surrounded by so much love. We all love so hard with all of our hearts. To me that’s a huge purpose in life. To give love and to love with all you got. After that I made it my goal to do just that.

I found so much comfort in giving to others in honor of Easton. I never expected that it would make me feel like I had a purpose again. Surely this was Gods bigger plan for me. It was during these times my faith in humanity had also been restored. It’s heart warming and so moving to see so much love others have to give. We have an army behind us and with that we can make amazing things happen. The love that everyone has shown and continues to show for Easton is nothing short of amazing. I will forever be thankful for it. It’s helped me live again and to enjoy the little things in life.

This life may not be perfect but there’s so much beauty in it and love to be shared.

And we all serve a purpose.

Holidays

2 days after Easton passed away it was Thanksgiving. While most gathered with their families celebrating what they were thankful for Ryan and I stayed home. We were numb and we couldn’t find any reason to celebrate. Instead we laid on our couch all day crying in disbelief that our baby was no longer here with us. A year prior we had announced to our families that we were expecting and now he was gone.

I used to love holidays. I used to look forward to all of them. Now I find it too hard to celebrate with out my baby. I no longer love holidays as they are just another painful reminder. Holidays just amplify who we are missing.

It hurts knowing that Easton never got the chance to celebrate the holidays. I wish so badly he got to experience atleast one with us. I know he would of loved it. He would of been showered with so much love by the ones we love most. I can only hope he feels that love today.

Happy Easter Easton Marc 🐰